Ensuring a Patient-Centric Approach

We partner with our Patient Advisory Board to ensure that we are continually considering and reflecting the patient and caregiver voice. Our advisors inform us on issues and perspectives unique to patients and their caregivers, helping ensure that we pursue a patient-centric approach. They help us better understand the patient and caregiver experience and how those experiences may impact trial design and enrollment. They also review and provide input on corporate and clinical development initiatives.

Meet Our Patient Advisory Board Members

quote ...you must continue to live a full life and always give everything but up.
Shannon
Caregiver of Daughter with FSGS
Shannon
quote ...your body is constantly adjusting...you must focus on staying healthy.
Kent
Living with FSGS
Kent
quote You can choose to live like someone who is ill or...live as healthy a life as possible.
Dine
Living with FSGS
Dine speaking at a podium
quote ...having a kidney disease does not define me, it is just a part of who I am.
Jill
Living with FSGS
Jill
panel participants on webcam screens

Kidney Month Panel Discussion

In March 2021, our Patient Advisory Board participated in Kidney Month Panel Discussion to share their stories and insights on living with FSGS and the need for innovation and new treatment solutions.